Multiple Sclerosis Week
Submitted: Thursday, Jun 07, 2007 at 08:20
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Kev M (NSW)
Hi all,
This week is the national Multiple Sclerosis Awareness Week. Some people seem to think that Multiple Sclerosis is an instant life ending sentence for the sufferer, this is not the case. My wife was diagnosed in July 2002 and since then we have had 2 healthy daughters, and travelled to some remote
places in Aust, so life can be sort of normal.
Today is the fund-raising day Check web link www.msra.org.au/
If anyone is able to assist in the fund-raising effort it will be greatly appreciated as your help also helps my family. My wife is currently relapsing and is in and out of hospital for treatment. She is also participating in an international trial for a cure. All monies raised go towards either research or sufferer assistance programs.
Please help if able, We need all the help we can get.
Cheers Kev
| Russell Coight:
He was presented with a difficult decision: push on into the stretching deserts, or return home to his wife.Lifetime Member
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Reply By: Member - Doug T (W.A) - Thursday, Jun 07, 2007 at 11:06
Thursday, Jun 07, 2007 at 11:06
Kev
I got 2 tickets in this Lottery, @ $100.00 each , would be really nice to win something , I have never been lucky in my life, but if I don't win anything I know my $200.00 has gone to a good cause
www.mslottery.com.au/intro.php
Doug
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Follow Up By: Kev M (NSW) - Thursday, Jun 07, 2007 at 11:42
Thursday, Jun 07, 2007 at 11:42
Doug,
Every bit helps,
It is a bastard of a condition to have.
Lets hope that you win something.
Thanks Kev
| Russell Coight:
He was presented with a difficult decision: push on into the stretching deserts, or return home to his wife.Lifetime Member
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Follow Up By: Member - Dunworkin (WA) - Thursday, Jun 07, 2007 at 15:24
Thursday, Jun 07, 2007 at 15:24
Yeah, we have a ticket in that too, one of our friends daughters has MS and she had her family after diagnosis, however her husband had been diagnosed with cancer at the same time but he seems to have beaten that so at the moment all is
well there.
We, like Doug T, would like to win something as
well but if we don't we know the money has gone to a good cause.
Hope all goes
well with your wife.
Cheers
D
FollowupID:
506426
Follow Up By: Member - Dunworkin (WA) - Thursday, Jun 07, 2007 at 15:26
Thursday, Jun 07, 2007 at 15:26
Oh, Oh, should have been a reply not a follow up. Seinors Moment!!!!!!!
FollowupID:
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Follow Up By: Kev M (NSW) - Thursday, Jun 07, 2007 at 15:51
Thursday, Jun 07, 2007 at 15:51
Hi D,
Thanks for your support.
Cheers Kev
| Russell Coight:
He was presented with a difficult decision: push on into the stretching deserts, or return home to his wife.Lifetime Member
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Reply By: Footloose - Thursday, Jun 07, 2007 at 13:21
Thursday, Jun 07, 2007 at 13:21
Please give your wife my very best wishes. I worked closely with a lady who got it and know a tiny bit about what she went through.
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Follow Up By: Kev M (NSW) - Thursday, Jun 07, 2007 at 14:00
Thursday, Jun 07, 2007 at 14:00
Thanks,
It can at times be very frustrating to watch someone that you love deteriate so quickly, She is now considering giving up work as she can't handle the stress. She only works 3 days a week, and child care eats up most of her income. For her to work is more of a social outing for her.
Cheers Kev
| Russell Coight:
He was presented with a difficult decision: push on into the stretching deserts, or return home to his wife.Lifetime Member
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Follow Up By: Footloose - Thursday, Jun 07, 2007 at 14:21
Thursday, Jun 07, 2007 at 14:21
Yes, can understand the position. The lady I worked with had late stage breast cancer and died. But the MS started all her problems.
My missus is recovering from breast cancer, so we've got our fingers crossed also. Even in her lucky condition, one arm is useless due to lymphodemia and he strength is severly limited. They didn't tell me I was going to have to do all the housework for 2 years :) Luckily she's back on her feet and at work, although as she has a high stress job I not confident that she will continue to work.
So I can emphasize with how both of you feel.
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Follow Up By: Kev M (NSW) - Thursday, Jun 07, 2007 at 16:12
Thursday, Jun 07, 2007 at 16:12
It's not just the housework, you end up being Mum as
well as Dad for the kids, the
cook, the one who listens, the shoulder to cry on and a shed load more.
It is times like these that test your relationship and find out who your friends are.
I would publically like to thank Stephen M (NSW) and RayJen Paj05 (NSW) for their personal offer of help, due to me recovering slowly from surgery and Sam relapsing with her MS.
Cheers Kev
| Russell Coight:
He was presented with a difficult decision: push on into the stretching deserts, or return home to his wife.Lifetime Member
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Follow Up By: Member - Au-2 - Thursday, Jun 07, 2007 at 16:39
Thursday, Jun 07, 2007 at 16:39
Sorry to hear about your wife Footloose, especially the lymphodema. I have been lucky not to have that complication so far, although do suffer from it at times. I am a 12 yr survivor and consider myself very lucky to be here.
I hope your good lady has a support network/group to help her through the tough times, apart from your goodly self of course.
Having others who have been there, to talk about worries, whether large or small, seems to make them lighter. I was emailed by a
young woman from Montreal a couple of weeks ago, who has a five year old son with brain cancer. She has no support over there and found a message I put on a website years ago, about my daughter, who had the same thing 20 yrs ago.
She seems to be more calm now and also coming to realize that her son won't necessarily die as a result of this disease -- with living proof that others have survived - not many did in my daughters time. Medical technology has made big inroads on all sorts of diseases recently and the researchers need all the help they can get.
OzeSheila.
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Reply By: Member - Royce- Thursday, Jun 07, 2007 at 23:21
Thursday, Jun 07, 2007 at 23:21
My mum lost her eyesight when I was born 1953, then bladder control when sister born 1956 then legs went with younger brother 1958. On each occasion she regained some control back.
She is approaching 80 now. Has been in a wheel-chair since my early teens.
Effected all our family. We lived on the fourth floor of housing commission flats.... had to pull her up all the flight s of stairs... no lifts.
Dad looks after her on her own... he's 84 with lots of leg probs.....
The good news. Mum was a guide leader, taking guides on
camping trips, did horse riding [4 disabled], still goes swimming and out with friends. She has had plenty of good times and happiness even with over 50 years of the [add whatever expletive you can think of here] disease.
Sadly at her age science will not help to change much, but in the future there is a lot of hope. Stem cell research etc.
The rotten disease takes people very badly at times and works more slowly with others.
I'm proud of the way my Dad has stuck to my Mum. We all did of course, but his life was so much more changed than ours.
Good luck to you Kev.
Cheers Royce
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Follow Up By: Kev M (NSW) - Friday, Jun 08, 2007 at 08:15
Friday, Jun 08, 2007 at 08:15
It take a lot of dedication to care for someone with it, we have gone through the temporary loss of sight, feeling, use of hands, depth perception.
It can be hard to cope at times but the good times far outweigh the bad, which is the things we look forward too.
Kev
| Russell Coight:
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